Monday, April 4, 2016
Her mother Tilakwa Devi, 60, can't stop weeping seeing her youngest daughter's condition that she says makes her look like a 'corpse'.
"She was a normal girl with healthy limbs but when she turned a teenager, her bones started weakening and she struggled to walk. She would limp a little but gradually she lost all strength and started shrinking," said Devi. "Within eight years of this mysterious disease, she completely lost strength and got bound to bed rest."Kumari said:
"I was always weak and could never run fast. I was a slow walker and as I grew up, I had to push my left leg. This is when my mother took me to a doctor for treatment. The bone specialist operated on my left leg but after a month, I couldn't move the leg."Dr Satyendra Singh, Civil Surgeon, Chatra, believes Kumari is suffering from a rare bone disease. He said: "This looks like a severe case of Osteogenesis Imperfecta.
"It is a rare congenital disease where the bones starts weakening and due to low density, they start shrinking. "It is not a completely curable disease but with medication, she can be given some relief."
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