18-year-old Madisyn Yuhas suffers from a rare condition called Recessive
Dystrophic Epidermolysis Bullosa, which makes it impossible for her to
engage in any form of body contact or even eat food due to the risk of
having her skin or mouth peel off from the slightest friction.
Madisyn spends her days in pain and is constantly alert to avoid body
contact. She is mostly covered in bandages from her neck down and feeds
through a tube because chewing gives her severe blisters in her
mouth. The inability to feed properly has caused her to be underweight.
Sadly, her condition has no cure and she has to live with it.
Doctors realized Madisyn had the condition when she was born without
skin from her knee down,but at the time, it was not as aggressive as it
is now. Her condition has worsened as she's aged, causing her to give up
certain physical activities like her love for dancing while confining
her to a wheel chair.
Madisyn's mum, Mary Yuhas, 46, speaking on the extent of her daughter's suffering said;
"Any time she brushes up against something, if she opened a door,
slipped on her shoes or even moved in bed she could tear her skin. Once
at school when she was standing in line, someone stepped on her foot and
it ripped the whole top layer of her skin off, right down to the
muscle." Bathing."
No comments:
Post a Comment